May 26, 2017

My Blog Just Earned THIS Award:



What a pleasant surprise to receive the following email from Maegan Jones, the content coordinatior with Healthline.
Hi John, 
Healthline would like to congratulate you on making our list of the Best Parkinson's Disease Blogs of 2017! Our editors carefully selected the most up-to-date, informative, and inspiring blogs that aim to uplift their readers through education and personal stories. We’re glad to have you on the list! Congratulations and keep blogging!
OK, I'm one of NINETEEN blos about PD that Healthline recognized. Still, I'm familiar with some of the others, and am happy to be in their company. Here's the full list.

Healthline described my blog this way:
John Schappi was diagnosed with Parkinson’s in 2009, at 80 years old. If you’re older and living with Parkinson’s, you might relate to his blog. He discusses the various struggles he’s had to overcome, such as coping with Parkinson’s after hip replacement surgery and exercising after surgery. Despite his challenges, he aims to live life to the fullest, and he inspires others with Parkinson’s to do the same.
A nice gift on a guy's 88th birthday.

Last year Healthline also gave my blog this recognition by including it on the list of the  Best Parkinson's Disease Blogs of 2016. 

May 3, 2017

My Chronic Problem with "Orthostatic Hypotension" + My New issue with Hyponatremia = the Worst Time I've Had with My Parkinson's

What follows is the text of an email I sent to my internist, my neurologist, and the doctor I see about blood pressure. The note describes two setbacks from last last week. These incidents illustrate why I've been having the toughest times yet dealing with Parkinson's disease (PD). 

The culprits? Orthostatic hypotension and hyponatremia.

Here's that email:


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These two conditions -- orthostatic hypotension and hyponatremia -- are increasingly impacting the quality of my life. They are major threats to my physical well-being. Witness these two incidents that happened last week.

1) Wednesday Lunch
I'd been looking forward to this lunch with a treasured friend who will celebrate her 88th birthday in July, two months after mine. I was thoroughly enjoying our reminiscing, but toward the end of the lunch I sensed that my blood pressure was dropping and that I was about to have an attack of orthostatic hypotension. 

Sure enough, I ended up of having to get one of the waiters to hold me up as I tried to use my walker to get to my friend's car. On the drive home, I called my part-time caregiver so he could meet us at the house. He had to pick me up and carry me inside.

I have been having these so-called orthostatic hypotension attacks with increasing frequency and severity for the past year or so. The diuretic blood pressure medication prescribed when I was in Sibley's Renaissance rehab center seems to have triggered even more attacks.

Also compounding my current malaise is the newly diagnosed hyponatremia. The low level of sodium was first noted in the blood work done in Dr. Marcus's office just before I fell and fractured my hip.
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