July 14, 2017

Update on Aging and Parkinson's and Me

Now that my energy is finally returning after this year's setbacks, I want to provide an update on the state of my aging and my Parkinson's disease (PD).

Aging
I had my 88th birthday on May 26. According to the Social Security Administration's Life Expectancy Calculator, a man who reaches age 88 now can expect, on average, to live to be 93.

As I said to my urologist in 1992 when he told me I had prostate cancer, it's the quality of my life -- not its length -- that matters. Since then, my primary doctors have heard the same thing from me.

My Parkinson's Diagnosis
Like about one third of people with Parkinson's, I don't have the tremor associated with the disease... a fact that often delays diagnosis. My internist at the time missed the boat completely. In 2005, I told him I had lost my sense of smell, an early warning of possible PD. In 2006, I reported that my right arm wasn't swinging normally. In 2007, I described having balance problems, and he sent me to a physical therapist who -- I later realized -- suspected PD and asked me repeatedly, "Have you told Dr. S about your right arm not swinging normally?" That was ten years ago.

That internist never diagnosed my Parkinson's. But my kids were becoming increasingly concerned about my right arm, and the slowing down of my body movements generally. At their suggestion, I saw a neurologist in September, 2009. He quickly diagnosed PD.

The Progression of My Parkinson's
PD is sometimes referred to as a "boutique" disease, unique to each individual. While there are broad commonalities of symptoms from one patient to the next, the progress of the disease can vary significantly.

Issues with movement are idiosyncratic. Non-motor symptoms are also very individualized. Some people (like me) find that symptoms like fatigue interfere more with daily life than problems with movement.

July 12, 2017

I'm Back to Blogging, but with a Renewed Determination to Follow My "Less is More" Mantra.

Looking back, I noticed I only posted once a month in April, May, and June. The first half of this year was lousy health-wise... my worst time ever. It began with a January fall that fractured my hip, which led to a three-week hospital stay for hip replacement and rehab. Other issues -- with names I'd never heard of before, like hyponutremia and orthostatic hypotension -- added to my miseries.

Those problems simply exacerbated normal health declines associated with my aging (I "celebrated" my 88th birthday in May) and nearly ten years of diagnosed Parkinson's disease.

To Blog or Not to Blog
That was the question I debated. Even before this year's setbacks, I knew my blog was becoming another example of my obsessive/compulsive/addictive tendencies. "Anything worth doing is worth overdoing" was my way of dealing with cigarettes, alcohol and sex.

I could have spent all those hours at the computer in other ways like exercising, meditating, or enjoying other pursuits.

That's the downside. Here are some positives:
  • I enjoy working on the blog. Both the writing and the researching are fun.
  • Feedback from readers tells me that the blog helps others who are struggling with issues stemming from Parkinson's disease and aging.
  • Working on the blog has given my life a sense of purpose and passion. Researchers have found that having a purpose is associated with happiness, better physical functioning, even better sleep. I'll take that!
  • Anul Gawande's bestseller Being Mortal explores our society's reluctance to talk about death and dying. As my family and friends know all too well, I'm willing to talk about anything.
I've always enjoyed telling others about my travels to new places. I'll be using this blog to report on my final journey.

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